Children’s stories

Freddie was born with an incredibly rare genetic condition called Galloway-Mowat Syndrome. His happy disposition and love of music has seen him thrive since coming to the charity.

Jonas was born with an extra chromosome that causes Down Syndrome leading to delays in his development. With the support of the service team at DVLCC, Jonas has taken his first independent steps within 5 months of being here!

After being unable to leave hospital for 8 months, Alissa was diagnosed with a rare genetic condition called Noonan syndrome. She has made huge progress at DVLCC.

Matilda was diagnosed with PVL which led to her developing cerebral palsy. Since coming to DVLCC she has grown in both confidence and ability.

Max was diagnosed with Bainbridge-Ropers Syndrome, a rare genetic disorder causing global development delay. Since coming to DVLCC Max has learnt new skills to reach his full potential.

Born prematurely at 25 weeks, Otis was diagnosed with quadriplegic cerebral palsy, affecting all four of his limbs. In his time at DVLCC, Otis has achieved more than his parents ever dreamt possible.

Born prematurely at 25 weeks, Albert had a tough start in life. After using all the services at DVLCC, Albert is about to start school!

Born at 23 weeks and 5 days, Elsie’s prematurity meant that her development was considerably delayed. With so many unknowns, Elsie’s parents weren’t sure what her future would look like until they came to DVLCC.

Born by emergency c-section at 32 weeks, Jothi spent his first 24 hours on a ventilator and the first 93 days of his life in the neonatal intensive care unit. His personal growth since coming to DVLCC is remarkable.

Lillyanna was 5 years old when her parents discovered DVLCC. She struggled with crawling, standing up and walking independently, in her short time with us she has made amazing progress.

Finlay was diagnosed with rare genetic disorder, Hao Fountain Syndrome. Affecting 250 people in the world, the syndrome causes muscle weakness and developmental delay – especially impacting speech. Finlay has made amazing progress since starting at DVLCC.