Freddie was born in 2023 and at 18 months old was diagnosed with Galloway Mowat Syndrome (GMS). GMS is a rare, life-limiting neurodegenerative disorder. As a result, Freddie is unable to do many things for himself including holding his head up and even sitting by himself.
In September 2024, Freddie’s parents discovered Dame Vera Lynn Children’s Charity, and started attending conductive education, music therapy and hydrotherapy sessions at the centre. In his short time with us, Freddie has been learning to sit independently, and can now sit cross-legged for a few seconds, all on his own.
Due to his condition, Freddie struggles with using his hands and our team are helping him work on his grasp, aim and his left-hand skills. Freddie is working so hard in his sessions and is making great progress.
Life is a challenge for Freddie’s family, but he remains a happy little boy with the ability to light up a room. His family are determined to give him all the help and support he needs, alongside the team at Dame Vera Lynn Children’s Charity.
“It’s a safe place for us and we love coming to the centre. I cannot thank the team enough for their warm and compassionate welcome into the community.”– Freddie’s mum, Anna