Our children’s stories
“Since Freddie has started at the charity I have been blown away by the friendliness and understanding of all the staff. I suddenly feel like our journey is not different and we are so included!”
Freddie was diagnosed with Galloway-Mowat Syndrome, a rare life-limiting disorder. Since starting at DVLCC, Freddie has begun to learn new skills and is making great progress.
Freddie, 2 years old
“I don’t think there’s another service that compares. We feel so lucky to be able to access it. You can tell that the staff really want to help and want Elsie to do well. It’s just so nice to have another cheerleader.”
Born at 23 weeks and 5 days, Elsie’s prematurity meant that her development was considerably delayed. With so many unknowns, Elsie’s parents weren’t sure what her future would look like until they came to DVLCC.
Elsie, 3 years old
“We cannot believe the difference in Lillyanna since she started at the Dame Vera Lynn Charity. We will be forever grateful for the help of this incredible charity.”
Lillyanna was 5 years old when her parents discovered DVLCC. She struggled with crawling, standing up and walking independently, in her short time with us she has made amazing progress.
Lillyanna, 6 years old
Dame Vera Lynn Children’s Charity has made a huge difference to Max and to our family. I’m so grateful that this amazing charity has this centre and helps these families.
Max was diagnosed with Bainbridge-Ropers Syndrome, a rare genetic disorder causing global development delay. Since coming to DVLCC Max has learnt new skills to reach his full potential.
Max, 3 years old
“All the consultants in the neonatal unit said repeatedly, ‘early intervention is key’ which is why we feel so strongly that all children like Jothi need access to support like we have with Dame Vera Lynn Children’s Charity.”
Born by emergency c-section at 32 weeks, Jothi spent his first 24 hours on a ventilator and the first 93 days of his life in the neonatal intensive care unit. His personal growth since coming to DVLCC is remarkable.
Jothi, 4 years old
“We’re so proud of the progress that Finlay has made since coming to Dame Vera Lynn Children’s Charity. It is life-changing for him to be able to communicate his needs with the family and it is amazing to hear him start to say our names.”
Finlay was diagnosed with rare genetic disorder, Hao Fountain Syndrome. Affecting 250 people in the world, the syndrome causes muscle weakness and developmental delay – especially impacting speech. Finlay has made amazing progress since starting at DVLCC.
Finlay, 4 years old
Albert has come on leaps and bounds. Now, our little boy runs around the park, which we never thought would happen. Without the help of the charity, he just wouldn’t be where he is now.
Born prematurely at 25 weeks, Albert had a tough start in life. After using all the services at DVLCC, Albert is about to start school!
Albert, 4 years old
