Alissa was born prematurely at 30 weeks via an emergency C-section and was unable to leave the hospital for eight long months. From the moment she arrived, she faced serious breathing and heart complications, requiring prolonged intubation and intensive care.
She was later diagnosed with a rare genetic condition called Noonan syndrome. While it affects each individual differently, it is commonly associated with congenital heart defects and can also lead to developmental delays.
After the initial joy of being able to leave the hospital, Alissa’s family found the future of life with their young baby overwhelming. After hearing about the work of the charity through their Early Support Key Worker, Alissa’s family brought her in for assessment when she was 18 months old.
“The charity provided us with hope, structure, and a community when we needed it most” – Khanya, Alissa’s mum
In her early sessions, Alissa was just beginning to explore sitting and standing, needing support with transitions, while crawling was still something entirely new to her. Initially shy, she relied on her mum being close by, but her natural curiosity soon began to shine through. She especially enjoyed her swimming sessions, where she loved being in the water, while gradually building her mobility and confidence with each visit.
Now, after one and a half years of support from the charity, Alissa has made remarkable progress. Her speech and language have improved significantly. When she first began, she could only say two words: “dada” and “bebi,” but now she can copy sounds, sing along to songs (particularly “Wheels on the Bus”), and proudly say “hello,” and engage wonderfully with those around her. She can now walk and run independently, which her mum says is “a dream come true” and she is able to climb onto a frame and move from sitting to standing on her own.
Thanks to her incredible progress, Alissa has recently been discharged from the charity. With her determined mindset and strong will, she has already achieved so many milestones, and there is no doubt she will continue to reach her full potential.
“The team at Dame Vera Lynn (Children’s Charity) has not only supported Alissa’s development but also helped us navigate our journey as parents of a child with additional needs. They have provided guidance, reassurance, and unwavering encouragement during one of the most challenging times of our lives.”
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From the very beginning, the charity’s positive approach, focusing on what a child can do rather than what they can’t, has allowed Matilda to thrive in a supportive and encouraging environment.
Matilda was diagnosed with PVL which led to her developing cerebral palsy. Since coming to DVLCC she has grown in both confidence and ability.
Matilda, 3 years old
I don’t think there’s another service that compares. We feel so lucky to be able to access it. You can tell that the staff really want to help and want Elsie to do well. It’s just so nice to have another cheerleader.
Born at 23 weeks and 5 days, Elsie’s prematurity meant that her development was considerably delayed. With so many unknowns, Elsie’s parents weren’t sure what her future would look like until they came to DVLCC.
Elsie, 3 years old
We cannot believe the difference in Lillyanna since she started at the Dame Vera Lynn Charity. We will be forever grateful for the help of this incredible charity.
Lillyanna was 5 years old when her parents discovered DVLCC. She struggled with crawling, standing up and walking independently, in her short time with us she has made amazing progress.
Lillyanna, 6 years old
