Resources

We have put the following information together to provide a 24/7 one-stop-information shop for parents, so they can access advice and guidance whenever they need it.  Please click on the links below to find out further information.

The West Sussex Local Offer helps you find information about local services, support and events for children and young people aged 0 - 25 years who have special educational needs or disabilities (SEND).

Surrey's Local Offer - the online hub for 0-25 year olds with special educational needs or a disability.

The Family Information Service hold information on local services for children aged 0-19.

Disability Living Allowance - Information for parents produced by the government.

West Sussex County Council information on childcare for children with special educational needs or disabilites (SEND).

Portage is a home visiting educational service for very young children with significant support needs from birth. Other children are referred later as their needs are identified. Portage provides support for families by working alongside parents offering practical help and ideas to encourage a child's emerging skills.

Reaching Families The organisation exists to "empower, care for and inform parents and families of children with special needs in West Sussex." We are achieving this through the delivery of high quality services that include:- Publications, training session for parents, facts sheets and parent support groups.

Council for Disabled Children Working collaboratively, from policy into practice, to ensure the best outcomes for children and young people.  They work across a range of subject areas including Early Years SEND, Education and Learning, Health and Wellbeing, Into Adulthood, Participation, Social Care, Whole Child.  

The Priority Services Register is a free service offered throughout the energy industry to domestic customers by all suppliers and network operators for customers across England, Wales and Scotland. Through the PSR, eligible customers can receive additional services in relation to their communication, access and safety needs. Your network operator can offer the following:  

  • Advance notice of planned power cuts by your electricity network operator so you can prepare or let them know in advance that you may need help on the day.
  • Provision of alternative heating and cooking services by your gas network operator in the event of a gas outage.
  • Priority support in the event of a power cut. Network operators aim to provide welfare in the form of meals, drinks, warmth and charging points as well as receiving priority updates.

So please check your energy suppliers website for both gas and electricity about their priority register service.  Have you considered also registering with your water company who may offer similar support services?  

Facebook Groups 

These groups have been useful for some parents which you may wish to join.  These groups are not associated with Dame Vera Lynn Children's Charity.

The HIE Network Forum The HIE Network is a group of UK-based parents, foster carers and other family members of children who experienced Hypoxic Ischaemic Encephalopathy (HIE) at birth or in infancy.  It is run by volunteers who are also parents of children with HIE.  The forum is a place for parents, foster carers and close family only.

Cerebral Palsy UK For those affected by Cerebral Palsy ... a place to offer advice, support or just general day to day discussion. UK based group only.

Cerebral Palsy PARENTS Information Group A parent based group of families with cerebral palsy in their lives.  Whether it's family, children, friends, please feel free to join to support each other with conversation around therapy, success and opportunities! 

Birth Injury Parents Support Group UK UK members only. Please note this group is for parents going through NHS medical negligence claims only. 

Special Needs Families - Mum on a Mission Community This group is run by Mum On A Mission and is a place you can share information, ask for advice, sell special needs equipment, post blogs.  Administrators are based around the South Coast area.

Special Needs Equipment and Advice Page Only This group is for support on special needs equipment and for general advice.

Special Needs Equipment - Buy Sell Swap UK Only This group is purely for buying/selling/swapping used special needs equipment and related items by parents and carers of children and young adults with disabilities in the UK.

The SEND Parents Handbook The author of the handbook, Yvonne Newbold manages this page. The Handbook is for families of children and adults with learning disabilities, autism and complex needs. 

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